cystic fibrosis

Home / cystic fibrosis

Upcoming Events

No events in this tag

No Comments

Log in to Reply
Enter your name...Nancy hearne
April 30, 2010
Are u kidding me?!??! This is fantastic! Thank u so much for such beautiful coverage!!!!
Log in to Reply
Marie Tahan Daniels
May 21, 2010
I went to the Laugh In gala last year at Anthology. It was my first time going to any of their charity events. It was so much fun and we had a great time. It was wonderful knowing that with as much as we enjoyed ourselves, it all was for a great cause.
Log in to Reply
Marie Tahan Daniels
October 13, 2010
So excited about this year’s Dia del Sol. Today is the big big day! The weather looks great. The guest list is fab. AND the set up is going smoothly. Can’t wait to share the pix with everyone.
Log in to Reply
Marie Tahan Daniels
October 15, 2010
Spectacular event. Was so much fun. The evening as certainly one of top quality entertainment and inspiration. To see powerhouse local celebs & good friends such as Danitza Villanueva, Yolanda S. Walther-Meade and Lee Ann Kim jump into action to raise funds AND awareness for the programs and work done by the Malashock organization was heart-warming. All the dancers were great and the judges were perfect! Monique Marvez with her funny gal, tv personality Mary Murphy kept the laughter rolling. Thank you Malashock for creating a great set of memories.
Log in to Reply
Marie Tahan Daniels
November 8, 2010
Was great to see the live stream of the Freedom Awards. You have a wonderful partner in Halogen TV. Never heard of them until this event. I really enjoyed the children singing the freedom song with Jason Mraz. It was very moving to see the Agape Choir. Thanks for offering it to the world.
Log in to Reply
JOSHUA OLATUNDE
November 30, 2010
Nice JOB here
Log in to Reply
JOSHUA OLATUNDE
November 30, 2010
Nice WORK here
Log in to Reply
Marie Tahan Daniels
January 14, 2011
FELICIDADES!!! It is a pleasure to have worked so closely with you both throughout the years on such an important mission that affects not only our immediate area but the entire region as a whole. You have been beacons of inspiration for showing the impact that we can have on our environment and communities. You set the bar high for the rest of us, pushing us upward toward great achievement.
Thank you for the dedication you have had for not only the SDNHM but throughout the region in your many causes on both sides of the border. It is an honor to Chair this event, honoring your legacy.
Log in to Reply
Contributor
February 8, 2011
Congrats to all the lucky ones who won the Live Auction items benefiting the San Diego Natural History Museum. Amazing trips and experiences were on this years docket and boy were there some doozies.
Log in to Reply
Contributor
February 17, 2011
Love the shoes girls!
Log in to Reply
Yolanda Walther-Meade
February 17, 2011
Thanks to all who attended the Dos Aguilas, Yolanda Selene and I were overwhelmed by the comments and good wishes for us, specially to enfasize the excellent work that the San Diego Natural History Museum does for the region…the natural habitat doesn’t recognize borders.
Log in to Reply
Marie Daniels
March 26, 2011
Great time. Met some great new people. Learned about a new cause. Thanks!
Log in to Reply
Marie Daniels
April 1, 2011
I love your ability to tell it like you hear it in your own head Tami because we have all been involved in scenarios of the same sort that truly just make our skin crawl. Thanks for the reminder that we perception is reality and that especially when working within the realm of the social good… accountability is at the HEIGHT of a charity’s mission for the community recipients AND the donors.
Marie
Log in to Reply
Marie Daniels
May 2, 2011
I think this is an interesting comment considering that their is honest assessment of personal blame in this post. If you work in non-profit, which is who these posts are aimed at, dear incognito, you would understand that this is a continuous issue that comes up. Clear communication and realistic expectations to and from volunteers consistently is a downfall of organizations across the country.
I also find it interesting that you aim your answer mistakenly at the author rather than the actual person who had the experience. This type of communication is precisely the example of what we as non-profit development teams encounter regularly. I am sure we could instead have Tami write the organization name and names of the individuals and let them publicly drag a good meaning organization through banter over an error in judgement on how adults should communicate when asking for favors from volunteers you either know or are hoping will become brand ambassadors. As the saying goes, there are 3 sides to every story.
The point for our audience to hear is listen to your volunteers.What is the amount of commitment you ask of a volunteer or new member? What is their level of attachment? Are they there to explore a new group, network, become potential donor, add a few hours of service or CHAIR the whole kit and caboodle?
Are you respectful of your own time and theirs? Have you communicated with all your volunteers in a timely consistent manner? Have you been honest with them about your needs throughout the process? Your teams and your blood pressure will be very thankful when this type of stress is avoided.
You will earn much more respect from your volunteers and colleagues by considering these points.
Good Luck to yourself. We appreciate your feedback and hope you can respond and contribute about the subject matter that development teams deal with day in and day out — blame is usually not one of them but communication certainly is when you are wearing many different hats.
Thank you.
Log in to Reply
Marie Tahan Daniels
May 3, 2011
We had a very interesting comment back this morning and I thank the visitor for their response. It is quite an emotional response so I can only assume that the responder who refuses to be known is probably involved. Tami and I have decided it would NOT be in the best interest to name this person because the possibility that the name the organization might be implied. The group is made up of much more substance than perhaps this one scenario and has higher goals to think about. The organization is a fledgling chapter of a networking awareness group, not an event production company. Please be assured that the organization in no way is responsible for the lack of tact that has been displayed. If there was a true concern for a non-profit organization out there which was misrepresenting itself to donors in the name of social good, rest assured we would then find it pertinent to name the organization.
*To the person who wrote the response: I am sorry this blog post was such an agitation in your day. The post does admit blame intentionally in the quote.The real barrier here for many organizations is a choice to communicate freely so that progress is made for the true goal. The word sabotage is strong. Use it wisely. The organization is by no means hurt by our restraint in naming it. We have gone to great lengths to NOT taint this very helpful, active international group. As with many situations, a brief talk between adults probably would have cleared many things up in the early stages. Good Luck to you.
Log in to Reply
NANCY HEARNE
May 5, 2011
Marie- Thanks for helping us get the word out! We are SO CLOSE to curing this horrible disease…and as many people know, CF has been making HUGH headlines lately with breakthrough treatments and medications. Liam is ALIVE today because of the CF Foundation – We can’t wait to CELEBRATE the cure together!
Blessings,
Nancy
Log in to Reply
Editor, Marie Tahan Daniels
May 5, 2011
Nancy,
We are so excited about this event. It is such a fun twist for a fundraiser. It will be a great way to get families outdoors, together, active and for a great reason. We will see you there!
Marie
Log in to Reply
Marie Daniels
May 20, 2011
No follow up pictures will be posted of this event for the community. The planner for the event at has just informed us that they have only one media outlet given access because it is a closed, private event. I hope this isn’t entirely true, that such bloggers like Margo Schwab and local community papers like the RSF Review are also ousted. These outlets bring the community in and do a world of good for the organizations.
Log in to Reply
tyrone
August 5, 2011
You got Ikah there!
Log in to Reply
Marie Daniels
August 9, 2011
I just CAN’T help it. I love this place. The Pearl has got just such a cool vibe without feeling pretentious. The wait staff is casual but professional and the design just invites you to lounge around with a cocktail a la ‘Mad Men’.
Food is fab and is the summertime movie and a swim. Check it out.
Log in to Reply
Marie Daniels
August 9, 2011
Okay… We went here for Opening night and I HAVE TO TELL YOU… The decor is awesome. Very Eclectic, swanky and chic casual as only California can handle. I love what Brian Malarkey has done in this space. He has inspired a sleepy Carmel Valley to up the ante when it comes to attractions in North County San Diego. Well Done!
Thank you for breathing a little excitement and pizazz back into the area.
Log in to Reply
Mary Beth Kellee
October 17, 2011
Thank you to our friends at The Giving Scene for your continued support and coverage at our 5th annual gala, Just Like My Child Foundation.
Log in to Reply
runningwithsd
August 31, 2015
What an amazing delicious opportunity!
- Log in to Reply
  A Gal & Her Fork, Marie Daniels
  August 31, 2015
  It’s always such a great discovery when traveling with a chef! Next up… mini TJ tours for bloggers, 6 in a mini van! 😉
Log in to Reply
suzettevalle
August 31, 2015
It looks like you had a great adventure in Tijuana! ¡Que rico!
Log in to Reply
runningwithsd
February 5, 2016
We had a pleasant surprise at Red Marlin this year. We did not feel like cattle. We just ate it! 🙂 PHEW!
- Log in to Reply
  A Gal & Her Fork, Marie Daniels
  February 9, 2016
  I love hearing that! I really think the restaurants are understanding that it IS an investment so they NEED to treat it that way.
  I can tell you, SDRW made a fan out of me at Solare, for sure! Thanks for sharing.
  Stay #curiousandhungry,
  A Gal & Her Fork
Log in to Reply
Alejandra Acosta
November 20, 2019
Thank you so much for those beautiful words about my cousin, definitely his parents need prayers for their pain .
- Log in to Reply
  Marie
  November 20, 2019
  I am so sorry for the loss to your family. He was a well-loved chef here and left his positive mark on many by being a wonderful example of pride, humility, passion and dedication.
Log in to Reply
Wendy Lemlin
November 21, 2019
Oh no! This is so very sad. But you’ve written a beautiful tribute, Marie.
Log in to Reply
Rich
November 21, 2019
My wife and I had the luck and pleasure to enjoy some of Jonathan’s brilliance at Viaje earlier this year. This is truly saddening and tragic news. Whoever perpetuated this heinous act needs to be brought to justice!
- Log in to Reply
  Marie
  March 11, 2020
  I fear in Rosarito justice is hidden away very well for cases such as these. It was very nice to recently see one of Jonatan’s wishes come true. He brought together the Chefs of Rosarito to discuss the founding of the Association of Chefs. It has come to fruition and together the chefs have been able to bring more attention to the growing food scene in the area.
  His wish was to make people aware that there was a reason to stop and enjoy dining options in Rosarito… not just pass through on the way to Ensenada or Valle de Guadalupe. Cheers!
Log in to Reply
Karen
July 6, 2020
I follow you on IG but am just reading this post for the first time. (We live in Baja near Splash – moving to France when our house sells…)
Sounds to me like this could have been COVID? I’m sure you’ve learned a lot since then.
Would love to connect here or in SD sometime…
Karen

Cookie	Duration	Description
cookielawinfo-checkbox-analytics	11 months	This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Analytics".
cookielawinfo-checkbox-functional	11 months	The cookie is set by GDPR cookie consent to record the user consent for the cookies in the category "Functional".
cookielawinfo-checkbox-necessary	11 months	This cookie is set by GDPR Cookie Consent plugin. The cookies is used to store the user consent for the cookies in the category "Necessary".
cookielawinfo-checkbox-others	11 months	This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Other.
cookielawinfo-checkbox-performance	11 months	This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Performance".
viewed_cookie_policy	11 months	The cookie is set by the GDPR Cookie Consent plugin and is used to store whether or not user has consented to the use of cookies. It does not store any personal data.